Newsletter #13 - September 2017
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VASCERN 1st Annual Seminar, Paris, October 13-14
The VASCERN 1st annual seminar will take place in Paris on October 13-14! This event will gather 80 participants, including all our Members for the first time! @VASCERN Follow… |
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VASCERN Coordination Team is growing!
The Project coordination team based in Paris (Healthcare Provider Coordinating: Assistance Publique Hôpitaux de Paris, Hospital Bichat - Center of Reference for Marfan Syndrome and related disorders) is growing: 2… |
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ERNs: a conceptual framework of cross-border healthcare
A study published in Orphanet Journal of Rare Diseases analyses the conceptual framework of European Reference Networks, established in the context of the Cross-Border Healthcare Directive (2011/24/EU). This study examines… |
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VASCERN Mobile APP
Set up a VASCERN free Mobile Application for IOS and Android, which will enable patients and doctors to find & reach out easily all VASCERN centers of expertise and patients… |
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EU Commissioner for Health on ERNs
At the occasion of the 18th European Day for Organ Donation and Transplantation, Vytenis Andriukaitis, EU Commissioner for Health and Food Safety, highlighted during his speech the added-value of European… |
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Dutch Lymphedema Guidelines
Read the new article on the Dutch Lymphedema guidelines by our Pediatric and Primary Lymphedema Chair, Dr Robert Damstra (the Dutch Working Group on Lymphedema): Damstra RJ, Halk A-B. The Dutch… |
| New HHT-WG Publication
A new scientific publication by Dr Sophie Dupuis-Girod, HHT-WG Co-chair and Dr Claire Shovlin, HHT-WG Chair, has been published: The Lung in Hereditary Hemorrhagic Telangiectasia by Sophie Dupuis-Girod, Vincent Cottin,… |
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Tue03Oct201710:00 am (Central European Summer Time)Videoconference call
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Tue03Oct2017
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Fri06Oct2017
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Mon09Oct2017
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Tue10Oct2017Wed11Oct2017Brussels, Belgium
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Fri13Oct2017Sat14Oct2017Paris, France
he VASCERN 1st annual seminar will take place in Paris on October 13-14th! This event will gather 80 participants, including all our Members for the first time!
Follow & tweet with us using #VASCERNdays2017
All our 31 Healthcare Providers Members will be represented by 1 or 2 representatives. 12 Patient Organisations, Members of our Patient Group (ePAG), will be represented as well.
Besides our Members, several VASCERN stakeholders (including the European Commission (ERN team, ERN IT team), ERN Board of Member States French representative, EURORDIS, FAIR Database, the European Joint Programme on Rare Diseases Research, ORPHANET, RD-Action) will be here.
On October 13th, it will be the first face-to-face gathering of all VASCERN Members since the official launch in Vilnius. This will be the opportunity to discuss:
- The structure and the functionning of the network since March, 2017;
- The state of play with regard to the implementation of our 1st year action plan (March 2017-February 2018);
- The patient involvement within VASCERN, in cooperation with EURORDIS;
- The achievements, challenges and opportunities for ERNs;
- The VASCERN Terms of Reference during the official VASCERN Board meeting.
On October 14th, the five VASCERN Rare Disease Working Groups will held parallel working sessions in the morning.
In the afternoon, the transversal WGs on eHealth-Training & Education and on Patient Registry will gather.
Draft Programme available here
Stay tuned to get the latest news about our 1st Annual Seminar!
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Mon16Oct2017
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Tue17Oct2017Sat21Oct2017
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Mon23Oct2017
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Wed25Oct2017
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Thu03May2018Sat05May2018Amsterdam, The Netherlands
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Wed30May2018Fri01Jun2018Amsterdam
ISSVA 2018
This biannual meeting, which is attended by a wide array of specialists including intervention radiologists, dermatologists, plastic surgeons, ENT surgeons, pediatricians, pediatric surgeons, oncologists and pathologists, presents the latest developments in this fast moving area.
All information and registration on the event page here
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Thu07Mar2019Sun10Mar2019Bologna, Italy
SAVE THE DATE - RE(ACT) Congress 2018
Visit the RE(ACT) Community website
no event