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image VASCERN ePAG meeting in Budapest

During the EURORDIS Membership Meeting in Budapest on May 19 - 20, some of our VASCERN ePAG (European Patient Advocacy Group) representatives had the opportunity to meet, and to share with all ePAG groups…

image Report of the ERN launch in Vilnius

The report of the European Reference Networks launch Conference, held in Vilnius on March 9-10th has been published. Read the report here

image eHealth Call for ERNs

The European Commission (INEA Agency) has launched a Connecting Europe Facility (CEF) Telecom Call on eHealth for European Reference Networks on May 6th. This call for ERNs aims to facilitate…

image Members Area available!

VASCERN Members are invited to create a EU login and access the VASCERN Collaborative IT Platform here !

image VASCERN Annual Meeting: 13-14 October 2017

The first VASCERN Annual Assembly and Board Meeting will take place in October 13-14th in Paris!

image ERN Project wins European Ombudsman Award

The European Reference Network Project "EU collaboration to help patients with rare diseases" led by the ERN Team of the European Commission (DG SANTE) has received the European Ombudsman Award for…

image Presentations & Videos of Vilnius online

All presentations and videos from the ERNs Launch Conference, which took place in Vilnius on March 9-10th 2017 are available here

image Patients’ Rights in EU Cross-border Healthcare

Information on patients' rights with regard to cross-border healthcare in the European Union: Leaflet on Patients' Rights in Cross-Border Healthcare Video on Patients' Rights in Cross-Border Healthcare Q&A on Patients'…

image What are ERNs? All EU Languages available

European Reference Networks are gathering the best expertise to improve care in Rare Diseases in Europe. 24 ERNs covering all major Rare Disease groups - this link includes 1 factsheet per…

image The ERNs Launch in Vilnius

More photos & live tweets on the VASCERN twitter moment of the Conference here VASCERN is back from the European Reference Networks Launch Conference, organised by the ERN Team of the…


Up-coming events

  • Wed
    31
    May
    2017
    Paris, France

    This workshop is organised by the French Ministry of Research.

  • Thu
    01
    Jun
    2017
    Fri
    02
    Jun
    2017
    Newcastle upon Tyne, UK

    VASCERN will be represented at this workshop.

    "ERNs need to be able to demonstrate their impact across a broad range of fields and activities, which requires carefully-selected indicators and at the same time a monitoring system including Key Performance Indicators should be set up to follow up the activity and caseload of the ERNs."

  • Tue
    06
    Jun
    2017
    Virtual meeting - Videoconference call

    VASCERN ePAG (Patient Group) representatives are meeting every first Tuesday of the month at 10am (GMT+1) in order to work together, share views and be involved in all VASCERN actions.

  • Tue
    06
    Jun
    2017
    Virtual meeting - Videoconference call

    VASCERN eHealth-WG monthly "virtual" meeting takes place every first Tuesday of the month at 5.30pm (GMT+1). The eHealth-WG works on all the transversal eHealth topics. The WG is especially in charge of the development of the VASCERN Mobile Application, which will facilitate cross-border healthcare and pathways throughout Europe in rare vascular diseases.

  • Thu
    08
    Jun
    2017
    Dubrovnik, Croatia

    In the framework of the Cure HTT 12th International Scientific Conference held in Dubrovnik, Croatia on June 8-11th, our VASCERN HHT-WG Members will have a first VASCERN HHT-WG face-to-face meeting.

  • Thu
    08
    Jun
    2017
    Sun
    11
    Jun
    2017
    Dubrovnik, Croatia

    Abstract submission here until February 28th

    This International event will gather world’s leading HHT experts in both basic research as well as clinical practice, including our VASCern HHT-WG Chairs and Members.

    Hans Jurgen-Mager, MD, PhD, HCP Representative and Member of the VASCern HHT-WG is also Co-Chair of the Cure-HHT Organising Committee for this international meeting.

    All information and registration available here

  • Mon
    12
    Jun
    2017
    Virtual meeting - Videoconference call

    VASCERN VASCA-WG Monthly "virtual" meeting takes place every 2nd Monday of the month at 7pm (GMT+1). The VASCA-WG (Vascular Anomalies) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share expertise for complex clinical cases to provide cross-border healthcare and conduct virtual consultations.

  • Wed
    14
    Jun
    2017
    Virtual meeting - Videoconference call

    The VASCERN Ethics-WG first virtual meeting will take place on June 14th.

  • Tue
    20
    Jun
    2017
    Wed
    21
    Jun
    2017
    Brussels, Belgium

    On June 20th & 21th, there will be a Joint meeting of the ERN Board of Member States (BoMS) and the ERN Coordinator's Group (ECG). Issues such as: call for new ERN members joining existing networks, affiliated partners, monitoring of ERNs and relationships between ERNs and Industry will be tackled.

    There will be a training session on the clinical case management system.

    The ECG (ERN Coordinator's Group) will meet and discuss issues such as Governance, ERN IT system, eHealth call for ERNs, research, health programme, monitoring & assessment of ERNs.

  • Mon
    26
    Jun
    2017
    Virtual meeting - Videoconference call

    VASCERN HTAD-WG Monthly "virtual" meeting takes place every 4th Monday of the month at 5pm (GMT+1). The HTAD-WG (Heritable Thoratic Aortic Diseases) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share expertise for complex clinical cases to provide cross-border healthcare and conduct virtual consultations.

  • Mon
    26
    Jun
    2017
    Virtual meeting - Videoconference call

    The next VASCERN PPL-WG Monthly "virtual" meeting will takes place on Monday 26th June, at 5pm (GMT+1). The PPL-WG (Pediatric and Primary Lymphedema) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share expertise for complex clinical cases to provide cross-border healthcare and conduct virtual consultations.

  • Wed
    28
    Jun
    2017
    Virtual meeting - Videoconference call

    VASCERN MSA-WG Monthly "virtual" meeting takes place every 4th Monday of the month at 5.30pm (GMT+1). The MSA-WG (Medium Sized Arteries - Vascular Ehlers Danlos) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share expertise for complex clinical cases to provide cross-border healthcare and conduct virtual consultations.

  • Wed
    28
    Jun
    2017
    10.30am (GMT+1)Virtual meeting - Videoconference call
  • Thu
    29
    Jun
    2017
    Fri
    30
    Jun
    2017
    London, UK

    All information and registration here

  • Thu
    29
    Jun
    2017
    Sat
    01
    Jul
    2017
    Prague, Czech Republic

    In Prague, over two days, 14 leading experts will review recent advances across the spectrum of cardiology. Interact with colleagues, exchange information and ideas, and get updated – helping you to provide the best care for your patients!

    Programme: here

    All information and registration here

     

  • Fri
    22
    Sep
    2017
    Sat
    23
    Sep
    2017
    Lyon, France

    The European Society of Vascular Surgery organises its 31th annual meeting in Lyon on September, 22-23rd 2017.

    All information here

  • Mon
    25
    Sep
    2017
    Fri
    29
    Sep
    2017
    Barcelona, Spain

    Every 2 years, ISL Conference welcomes 1.000 doctors and therapy professionals from all over the world, to benefit from new research and innovate solutions to the many issues faced by health practitioners who treat people with lymphatic dysfunction.
    New deadline for abstract submission : 31st March 2017

    More information and registration here

  • Fri
    13
    Oct
    2017
    Sat
    14
    Oct
    2017
  • Thu
    03
    May
    2018
    Sat
    05
    May
    2018
  • Wed
    30
    May
    2018
    Fri
    01
    Jun
    2018
    Amsterdam

    ISSVA 2018

    This biannual meeting, which is attended by a wide array of specialists including intervention radiologists, dermatologists, plastic surgeons, ENT surgeons, pediatricians, pediatric surgeons, oncologists and pathologists, presents the latest developments in this fast moving area.

    All information and registration on the event page here

  • Thu
    07
    Mar
    2019
    Sun
    10
    Mar
    2019

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