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VASCERN ePAG meeting in Budapest
During the EURORDIS Membership Meeting in Budapest on May 19 - 20, some of our VASCERN ePAG (European Patient Advocacy Group) representatives had the opportunity to meet, and to share with all ePAG groups…
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Report of the ERN launch in Vilnius
The report of the European Reference Networks launch Conference, held in Vilnius on March 9-10th has been published. Read the report here
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eHealth Call for ERNs
The European Commission (INEA Agency) has launched a Connecting Europe Facility (CEF) Telecom Call on eHealth for European Reference Networks on May 6th. This call for ERNs aims to facilitate…
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Members Area available!
VASCERN Members are invited to create a EU login and access the VASCERN Collaborative IT Platform here !
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VASCERN Annual Meeting: 13-14 October 2017
The first VASCERN Annual Assembly and Board Meeting will take place in October 13-14th in Paris!
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ERN Project wins European Ombudsman Award
The European Reference Network Project "EU collaboration to help patients with rare diseases" led by the ERN Team of the European Commission (DG SANTE) has received the European Ombudsman Award for…
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Presentations & Videos of Vilnius online
All presentations and videos from the ERNs Launch Conference, which took place in Vilnius on March 9-10th 2017 are available here
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Patients’ Rights in EU Cross-border Healthcare
Information on patients' rights with regard to cross-border healthcare in the European Union: Leaflet on Patients' Rights in Cross-Border Healthcare Video on Patients' Rights in Cross-Border Healthcare Q&A on Patients'…
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What are ERNs? All EU Languages available
European Reference Networks are gathering the best expertise to improve care in Rare Diseases in Europe. 24 ERNs covering all major Rare Disease groups - this link includes 1 factsheet per…
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The ERNs Launch in Vilnius
More photos & live tweets on the VASCERN twitter moment of the Conference here VASCERN is back from the European Reference Networks Launch Conference, organised by the ERN Team of the…
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Up-coming events
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Paris, France
This workshop is organised by the French Ministry of Research.
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Newcastle upon Tyne, UK
VASCERN will be represented at this workshop.
"ERNs need to be able to demonstrate their impact across a broad range of fields and activities, which requires carefully-selected indicators and at the same time a monitoring system including Key Performance Indicators should be set up to follow up the activity and caseload of the ERNs."
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Virtual meeting - Videoconference call
VASCERN ePAG (Patient Group) representatives are meeting every first Tuesday of the month at 10am (GMT+1) in order to work together, share views and be involved in all VASCERN actions.
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Virtual meeting - Videoconference call
VASCERN eHealth-WG monthly "virtual" meeting takes place every first Tuesday of the month at 5.30pm (GMT+1). The eHealth-WG works on all the transversal eHealth topics. The WG is especially in charge of the development of the VASCERN Mobile Application, which will facilitate cross-border healthcare and pathways throughout Europe in rare vascular diseases.
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Dubrovnik, Croatia
Abstract submission here until February 28th
This International event will gather world’s leading HHT experts in both basic research as well as clinical practice, including our VASCern HHT-WG Chairs and Members.
Hans Jurgen-Mager, MD, PhD, HCP Representative and Member of the VASCern HHT-WG is also Co-Chair of the Cure-HHT Organising Committee for this international meeting.
All information and registration available here
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Virtual meeting - Videoconference call
VASCERN VASCA-WG Monthly "virtual" meeting takes place every 2nd Monday of the month at 7pm (GMT+1). The VASCA-WG (Vascular Anomalies) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share expertise for complex clinical cases to provide cross-border healthcare and conduct virtual consultations.
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Virtual meeting - Videoconference call
The VASCERN Ethics-WG first virtual meeting will take place on June 14th.
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Brussels, Belgium
On June 20th & 21th, there will be a Joint meeting of the ERN Board of Member States (BoMS) and the ERN Coordinator's Group (ECG). Issues such as: call for new ERN members joining existing networks, affiliated partners, monitoring of ERNs and relationships between ERNs and Industry will be tackled.
There will be a training session on the clinical case management system.
The ECG (ERN Coordinator's Group) will meet and discuss issues such as Governance, ERN IT system, eHealth call for ERNs, research, health programme, monitoring & assessment of ERNs.
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Virtual meeting - Videoconference call
VASCERN HTAD-WG Monthly "virtual" meeting takes place every 4th Monday of the month at 5pm (GMT+1). The HTAD-WG (Heritable Thoratic Aortic Diseases) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share expertise for complex clinical cases to provide cross-border healthcare and conduct virtual consultations.
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Virtual meeting - Videoconference call
The next VASCERN PPL-WG Monthly "virtual" meeting will takes place on Monday 26th June, at 5pm (GMT+1). The PPL-WG (Pediatric and Primary Lymphedema) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share expertise for complex clinical cases to provide cross-border healthcare and conduct virtual consultations.
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Virtual meeting - Videoconference call
VASCERN MSA-WG Monthly "virtual" meeting takes place every 4th Monday of the month at 5.30pm (GMT+1). The MSA-WG (Medium Sized Arteries - Vascular Ehlers Danlos) will discuss during these meetings all actions to be implemented by VASCERN. Once the Clinical Case Management Platform will be available, the experts will be able to discuss and share expertise for complex clinical cases to provide cross-border healthcare and conduct virtual consultations.
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10.30am (GMT+1)Virtual meeting - Videoconference call
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London, UK
All information and registration here
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Prague, Czech Republic
In Prague, over two days, 14 leading experts will review recent advances across the spectrum of cardiology. Interact with colleagues, exchange information and ideas, and get updated – helping you to provide the best care for your patients!
Programme: here
All information and registration here
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Lyon, France
The European Society of Vascular Surgery organises its 31th annual meeting in Lyon on September, 22-23rd 2017.
All information here
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Barcelona, Spain
Every 2 years, ISL Conference welcomes 1.000 doctors and therapy professionals from all over the world, to benefit from new research and innovate solutions to the many issues faced by health practitioners who treat people with lymphatic dysfunction. New deadline for abstract submission : 31st March 2017
More information and registration here
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Amsterdam, The Netherlands
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Amsterdam
ISSVA 2018
This biannual meeting, which is attended by a wide array of specialists including intervention radiologists, dermatologists, plastic surgeons, ENT surgeons, pediatricians, pediatric surgeons, oncologists and pathologists, presents the latest developments in this fast moving area.
All information and registration on the event page here
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