VASCERN
European Reference Network on Rare Multisystemic Vascular Diseases
Newsletter #9 - March 2017
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What are ERNs? All EU Languages available
European Reference Networks are gathering the best expertise to improve care in Rare Diseases in Europe. 24 ERNs covering all major Rare Disease groups - this link includes 1 factsheet per…
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The ERNs Launch in Vilnius
More photos & live tweets on the VASCERN twitter moment of the Conference here VASCERN is back from the European Reference Networks Launch Conference, organised by the ERN Team of the…
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Follow VASCERN on Twitter!
VASCERN has now a twitter account ! Follow us @vascern
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European Reference Networks Conference
The European Commission organises the 3rd European Reference Networks Conference in Vilnius on March, 9-10th. This event will be the official launch and start of the first labelized European Reference…
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EURORDIS 20th anniversary
2017 is EURORDIS-Rare Diseases Europe, the European association representing rare diseases, 20th anniversary. This is the opportunity to look at 20 years of achievements and challenges ahead: here
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PPL-WG New Publications
New collaborative publications have been published these last months by the Chairs of VASCERN Pediatric and Primary Lymphedema Working Group, Dr. Robert Damstra and Prof. Sahar Mansour and her HCP substitute…
HTAD-WG New Publication
A new HTAD-WG collaborative research paper has been published by Prof Guillaume Jondeau and CRMR Marfan team members (Dr Olivier Milleron, Maud Langeois, Myrtille Spentchian, Prof Catherine Boileau) as well as HTAD-WG…
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3rd Health Programme WP 2017
The European Commission (DG Santé) has adopted on January 26th the Work Programme 2017 under the 3rd Health Programme. This WP includes funding for supporting European Reference Networks (ERNs) with a total…
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EU Call for Rare Disease Registries
The European Commission has published a Call for proposals for Projects on Rare Disease Registries for approved ERNs on December, 21st. EU CALL RARE DISEASES REGISTRIES (PJ-06-2016) Aim: increase knowledge…
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Upcoming events
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Valletta, Malta
This high-level workshop is organised by the Maltese Presidency of the EU Council of the European Union at the Grand Master’s Palace , in parallel to the informal meeting of EU Ministers of Health. The Maltese Presidency has established Rare Diseases as one of its core priorities.
European Reference Networks will be represented to this meeting.
"The aim is to discuss the possibilities for structured cooperation in rare diseases research, tools, and healthcare at the EU level and ways of adapting already existing programmes by scaling them up and integrating them under the same umbrella, creating a sustainable ecosystem of knowledge generation."
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Madrid, Spain
The European Commission organises a Workshop on Rare Diseases Registries in Madrid (March 21-22nd), on the dissemination of the 2008-2015 Health Programme results. This is organized in cooperation with the Centre for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III - Spanish Ministry of Economy, Industry and Competitiveness. The event will disseminate results of the EU Health Programme co-funded conducted projects and Joint Actions on Registries.
The future European platform on Rare Diseases Registration, as well as Registries through the European Reference Networks will be tackled.
Registration until March 20th here
Agenda here
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Dublin, Ireland
Organised by Rare Diseases Ireland. Info and registration here
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Budapest, Hungary
Save the date! All information about the meeting and the patient fellowships are available here
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Stuttgart, Germany
More information and registration here
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Dubrovnik, Croatia
Abstract submission here until February 28th
This International event will gather world’s leading HHT experts in both basic research as well as clinical practice, including our VASCern HHT-WG Chairs and Members.
Hans Jurgen-Mager, MD, PhD, HCP Representative and Member of the VASCern HHT-WG is also Co-Chair of the Cure-HHT Organising Committee for this international meeting.
All information and registration available here
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London, UK
All information and registration here
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Prague, Czech Republic
In Prague, over two days, 14 leading experts will review recent advances across the spectrum of cardiology. Interact with colleagues, exchange information and ideas, and get updated – helping you to provide the best care for your patients!
Programme: here
All information and registration here
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Lyon, France
The European Society of Vascular Surgery organises its 31th annual meeting in Lyon on September, 22-23rd 2017.
All information here
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Barcelona, Spain
Every 2 years, ISL Conference welcomes 1.000 doctors and therapy professionals from all over the world, to benefit from new research and innovate solutions to the many issues faced by health practitioners who treat people with lymphatic dysfunction. New deadline for abstract submission : 31st March 2017
More information and registration here
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Amsterdam
ISSVA 2018
This biannual meeting, which is attended by a wide array of specialists including intervention radiologists, dermatologists, plastic surgeons, ENT surgeons, pediatricians, pediatric surgeons, oncologists and pathologists, presents the latest developments in this fast moving area.
All information and registration on the event page here
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Clinical calls
If you follow a cohort of patients with FMD, and are willing to contribute to the European FMD registry and join a network of specialists interested by the clinical and basic aspects of the disease, please contact us (FMD-saintluc@uclouvain.be).
Read the call here
EU calls: 3rd Health Programme and Horizon 2020
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Aim: increase knowledge on rare diseases and develop clinical research
Eligibility: only applicants members of approved ERNs are eligible to be co-funded.
Scope: from at least 3 countries Description: The activities to be carried out concern the creation of 3-4 new registries on rare diseases. These registries should constitute key instruments to increase knowledge on rare diseases and develop clinical research. Collaborative efforts to establish data collection and maintain them will be considered, provided that these resources are open and accessible. Registries should be built with the support and according to the standards set up by the European Platform on rare diseases registration and provide all necessary data to the Platform (taking the relevant data protection rules into account).
Call text: here
Budget: EUR 1.200.000 (indicative budgetary ceiling per grant to be awarded in 2017 is EUR 400.000, for 3 to 4 registries)
Deadline: March, 21st
All information: here
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Topic Identification: SC1-HCO-07-2017
Stay tuned: here
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Topic identifier: SC1-HCO-03-2017 Types of action: ERA-NET-Cofund ERA-NET Cofund
More information here
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Topic identifier: SC1-PM-03-2017 Types of action: RIA Research and Innovation action
Deadline: 11 April 2017
More information here
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Topic identifier: SC1-HCO-08-2017 Types of action: CSA Coordination and support action
More information and call documents here
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Topic identifier: SC1-PM-08-2017 Types of action: RIA Research and Innovation action
Deadline: April 11th 2017
More information and call documents here
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Topic identifier: SC1-PM-02-2017 Types of action: RIA Research and Innovation action
Deadline: April 11th 2017
More information and call documents: here
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Topic identifier: SC1-PM-10-2017 Types of action: RIA Research and Innovation action
Deadline: April 11th 2017
More information and call documents here
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Topic identifier: SC1-PM-20-2017 Types of action: RIA Research and Innovation action
Deadline: April 11th 2017
More information and call documents here
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Call identifier: ERC-2017-AdG
ERC Advanced Grant Principal Investigators are expected to be active researchers and to have a track record of significant research achievements in the last 10 years which must be presented in the application. There is little prospect of an application succeeding in the absence of such a record, which identifies investigators as exceptional leaders in terms of originality and significance of their research contributions.
More information in the ERC Work Programme 2017 (pp. 25-28 on AdG)
VASCERN, the European Reference Network on rare multisystemic vascular diseases
www.VASCERN.eu
To change your suscription here
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