VASCERN

European Reference Network on Rare Multisystemic Vascular Diseases

Newsletter #9 - March 2017

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image What are ERNs? All EU Languages available

European Reference Networks are gathering the best expertise to improve care in Rare Diseases in Europe. 24 ERNs covering all major Rare Disease groups - this link includes 1 factsheet per…

image The ERNs Launch in Vilnius

More photos & live tweets on the VASCERN twitter moment of the Conference here VASCERN is back from the European Reference Networks Launch Conference, organised by the ERN Team of the…

Follow VASCERN on Twitter!

VASCERN has now a twitter account ! Follow us @vascern

image European Reference Networks Conference

The European Commission organises the 3rd European Reference Networks Conference in Vilnius on March, 9-10th. This event will be the official launch and start of the first labelized European Reference…

image EURORDIS 20th anniversary

2017 is EURORDIS-Rare Diseases Europe, the European association representing rare diseases, 20th anniversary. This is the opportunity to look at 20 years of achievements and challenges ahead: here

image PPL-WG New Publications

New collaborative publications have been published these last months by the Chairs of VASCERN Pediatric and Primary Lymphedema Working Group, Dr. Robert Damstra and Prof. Sahar Mansour and her HCP substitute…

 

HTAD-WG New Publication

A new HTAD-WG collaborative research paper has been published by Prof Guillaume Jondeau and CRMR Marfan team members (Dr Olivier Milleron, Maud Langeois, Myrtille Spentchian, Prof Catherine Boileau) as well as HTAD-WG…

image 3rd Health Programme WP 2017

The European Commission (DG Santé) has adopted on January 26th the Work Programme 2017  under the 3rd Health Programme. This WP includes funding for supporting European Reference Networks (ERNs) with a total…

  EU Call for Rare Disease Registries

The European Commission has published a Call for proposals for Projects on Rare Disease Registries for approved ERNs on December, 21st. EU CALL RARE DISEASES REGISTRIES (PJ-06-2016) Aim: increase knowledge…


Upcoming events
  • Mon
    20
    Mar
    2017
    Valletta, Malta

    This high-level workshop is organised by the Maltese Presidency of the EU Council of the European Union at the Grand Master’s Palace , in parallel to the informal meeting of EU Ministers of Health. The Maltese Presidency has established Rare Diseases as one of its core priorities.

    European Reference Networks will be represented to this meeting.

    "The aim is to discuss the possibilities for structured cooperation in rare diseases research, tools, and healthcare at the EU level and ways of adapting already existing programmes by scaling them up and integrating them under the same umbrella, creating a sustainable ecosystem of knowledge generation."

  • Tue
    21
    Mar
    2017
    Wed
    22
    Mar
    2017
    Madrid, Spain

    The European Commission organises a Workshop on Rare Diseases Registries in Madrid (March 21-22nd), on the dissemination of the 2008-2015 Health Programme results. This is organized in cooperation with the Centre for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III - Spanish Ministry of Economy, Industry and Competitiveness. The event will disseminate results of the EU Health Programme co-funded conducted projects and Joint Actions on Registries.

    The future European platform on Rare Diseases Registration, as well as Registries through the European Reference Networks will be tackled.

    Registration until March 20th here

    Agenda here

  • Fri
    07
    Apr
    2017
    Dublin, Ireland

    Organised by Rare Diseases Ireland. Info and registration here

  • Fri
    19
    May
    2017
    Sat
    20
    May
    2017
    Budapest, Hungary

    Save the date! All information about the meeting and the patient fellowships are available here

  • Fri
    26
    May
    2017
    Sat
    27
    May
    2017
    Stuttgart, Germany

    More information and registration here

  • Thu
    08
    Jun
    2017
    Sun
    11
    Jun
    2017
    Dubrovnik, Croatia

    Abstract submission here until February 28th

    This International event will gather world’s leading HHT experts in both basic research as well as clinical practice, including our VASCern HHT-WG Chairs and Members.

    Hans Jurgen-Mager, MD, PhD, HCP Representative and Member of the VASCern HHT-WG is also Co-Chair of the Cure-HHT Organising Committee for this international meeting.

    All information and registration available here

  • Thu
    29
    Jun
    2017
    Fri
    30
    Jun
    2017
    London, UK

    All information and registration here

  • Thu
    29
    Jun
    2017
    Sat
    01
    Jul
    2017
    Prague, Czech Republic

    In Prague, over two days, 14 leading experts will review recent advances across the spectrum of cardiology. Interact with colleagues, exchange information and ideas, and get updated – helping you to provide the best care for your patients!

    Programme: here

    All information and registration here

  • Fri
    22
    Sep
    2017
    Sat
    23
    Sep
    2017
    Lyon, France

    The European Society of Vascular Surgery organises its 31th annual meeting in Lyon on September, 22-23rd 2017.

    All information here

  • Mon
    25
    Sep
    2017
    Fri
    29
    Sep
    2017
    Barcelona, Spain

    Every 2 years, ISL Conference welcomes 1.000 doctors and therapy professionals from all over the world, to benefit from new research and innovate solutions to the many issues faced by health practitioners who treat people with lymphatic dysfunction.
    New deadline for abstract submission : 31st March 2017

    More information and registration here

  • Wed
    30
    May
    2018
    Fri
    01
    Jun
    2018
    Amsterdam

    ISSVA 2018

    This biannual meeting, which is attended by a wide array of specialists including intervention radiologists, dermatologists, plastic surgeons, ENT surgeons, pediatricians, pediatric surgeons, oncologists and pathologists, presents the latest developments in this fast moving area.

    All information and registration on the event page here

  • Thu
    07
    Mar
    2019
    Sun
    10
    Mar
    2019

Clinical calls
FRI
31
MAR
2017

If you follow a cohort of patients with FMD, and are willing to contribute to the European FMD registry and join a network of specialists interested by the clinical and basic aspects of the disease, please contact us (FMD-saintluc@uclouvain.be).

Read the call here

 

EU calls: 3rd Health Programme and Horizon 2020
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VASCERN, the European Reference Network on rare multisystemic vascular diseases
www.VASCERN.eu
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