During the EURORDIS Membership Meeting in Budapest on May 19 – 20, some of our VASCERN ePAG (European Patient Advocacy Group) representatives had the opportunity to meet, and to share with all ePAG groups challenges & achievements in engaging with new ERNs.
Besides this face-to-face meeting in the framework of the EURORDIS Membership Meeting, our Patient Group started to work through “virtual” monthly meeting since the official launch of VASCERN !