In the framework of ERNs, EURORDIS, the association which represent the Voice of Rare Diseases Patients in the European Union, will set-up “EURORDIS Patient Advisory Groups – EPAGs” linked to the 21 thematic ERN grouping. EURORDIS Call to Patient Representatives is open until April, 18th and elections will take place between …
The European Commission has organised the ERN Info Day in Brussels on April, 7th. This event gathered stakeholders interested in the ERN project and ERN Coordinators. Following the morning presentations on the ERN call for proposals, we have attended the ERN Board of Coordinators meeting with the European Commission, EURORDIS, as …
Welcome to this new website that supports the first European Reference Networks (ERNs) on Rare Diseases!