Newsletters
A mega edition of the VASCERN newsletter, containing news from over the summer and a very busy month of September, is now available!!!??⭐ Stories include the publication of our Do's and Don'ts factsheets for Marfan syndrome, vascular Ehlers-Danlos syndrome and Hereditary Haemorrhagic Telangiectasia, VASCERN Spotlights article featuring Leo Schultze Kool, New Coordination Team Member, HHT-WG’s Outcome Measures Published in the OJRD, Aortic Disease Awareness Day, EJP-RD accepted and much more!! https://vascern.eu/news/newletters/?email_id=46 Marfan Europe NetworkHHT Onlus EURORDIS - European Rare Diseases Organisation Orphanet Filière de santé Maladies Rares FAVA-Multi ... See more
