Event Information:
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Tue28Nov20176 PM (GMT+1)Videoconference call - Webex
VASCERN Registry-WG monthly virtual meeting
Following the Paris face to face meeting during the 1st annual seminar, the VASCERN Registry WG meeting #4 will take place place virtually in November.
The VASCERN Registry WG will discuss:
- The EU common minimal dataset for Rare disease registration
- The FAIR principle, which was presented to all by Dr. Marco ROOS during our 1st Annual Seminar