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The #ProtectERNs campaign has been launched by Genetic Alliance UK! They are urging the UK Government and the EU to consider the value of the European Reference Networks (to both European and British rare disease patients) in the Brexit negotiations and to secure the sustained involvement of the UK in ERNs after March 29th, 2019. In VASCERN alone we have 4 Healthcare Providers (HCPs) from the UK, and don't wan't to lose them or their dedicated experts! To show your support, you can sign here: https://protect-erns.eu/showyoursupport/ #Brexit #RareDiseases #ShareCareCure ... See more
