Oslers/HHT Sverige
Tomorrow is Rare Disease Day!!! ?? What have you got planned? We'll be dropping by the French Rare Disease Networks' event in Paris to say hello and spread awareness about the European Reference Networks and rare vascular diseases! And in the spirit of #RareDiseaseDay we thought we would already share this great interview with Mildred Lundgren, Oslers/HHT Sverige secretary and patient advocate in the VASCERN European Patient Advocacy Group (ePAG), who gives her insights on the current priorities and needs of HHT patients and how to get involved to influence policy changes! Direct link to article here➡: https://drive.google.com/file/d/16ta4nmrQk90n02USXHV4NBBJEAKLfv0A/view ... See more
