Looking through the photos from #VASCERNDays2018 and found a great one of our European Patient Advocacy Group (ePAG) Chair and Co-Chairs! From left to right: Lise Murphy (ePAG Co-Chair for HTAD Svenska Marfanföreningen), Claudia Crocione (ePAG Co-Chair for HHT HHT Onlus), Juergen Grunert (ePAG Chair and Co-chair for the MSA WG Deutsche Ehlers-Danlos Initiative e. V.), Caroline van den Bosch (ePAG Co-Chair for the VASCA WG Hevas) and Natascha Assies (ePAG Co-Chair for the PPL WG @Nederlands Nederlands Netwerk voor Lymfoedeem & Lipoedeem - NLNet). This group of patient advocates participate in the 5 rare disease working group monthly meetings, representing the patient voice in everything we do! #PatientInvovement EURORDIS - European Rare Diseases Organisation ... See more
