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The first edition of the ERN newsletter by the European Commission (DG Sante) has been released!!! It contains all the news from the 24 ERNs, including an article on VASCERN's Do’s and Don’ts Factsheets for rare vascular disease patients in the "Good practices and inspirational stories" section! ?? Also includes interviews + an article on the French National Plan for rare diseases (as an example of how ERNs are embedded in the national rare disease policy)! So happy to be a part of this ERN community! ?Check out the newsletter here: https://ec.europa.eu/newsroom/sante/newsletter-specific-archive-issue.cfm?newsletter_service_id=1431&lang=default MetabERN ERKNet eUROGEN Rare Endo-ERN Ern-Eye ... See more
