Prof Claire Shovlin (Chair of our Hereditary Hemorrhagic Telangiectasia Working Group #HHT) and Dr. Leema Roberts (Chair of our Medium-Sized Arteries Working Group #vEDS) were in London today representing VASCERN at the very important UK European Reference Networks Conference, organised by Genetic Alliance UK! The success of the ERNs so far, #Brexit and its possible implications for UK participation, and the UK strategy for Rare Diseases were all discussed! We are lucky to have 4 amazing UK HCPs in VASCERN (in addition to the HHT and MSA WG Chairs pictured, we also have two in the PPL-WG represented by Prof Vaughan Keeley and PPL-WG Co-chair Prof Sahar Mansour)! #ERNeu #ProtectERNs EURORDIS - European Rare Diseases Organisation Ern-Rnd European Reference Network for Rare Neurological Diseases ... See more
