A HUGE congratulations to Claudia Crocione, our European Patient Advocacy Group (ePAG) Co-Chair for Hereditary Hemorrhagic Telangiectasia (HHT), who has been recognised with the EURORDIS - European Rare Diseases Organisation Volunteer Award!! ??❤ Claudia is an invaluable member of VASCERN and we couldn't be happier for her! ☺She will collect her well-deserved award in February at the 9th edition of the EURORDIS Black Pearl Awards. Read more here: https://vascern.eu/vascern-epag-co-chair-for-hht-claudia-crocione-one-of-the-eurordis-black-pearl-awardees-for-2020/ HHT Onlus Cure HHT HHT España Morbus Osler Selbsthilfe e.V. - www.morbus-osler.de HHT UK Amro France HHT ... See more