Photos from VASCERN: The ERN on rare multisystemic vascular diseases's post
What a great Rare Disease Day it was! ?? Thanks to the French National Rare Disease Networks for organising such a fun event at Gare du Nord in Paris today! There was music, a photobooth, face painting, and most of all there were lots of people coming by to learn about rare diseases and show their support! Was great to represent the European Reference Networks with Ern-Eye and Eurobloodnet - European Reference Network on Rare Hematological Diseases and to see some familiar faces! What did you do for #RareDiseaseDay2020? ?? #ERNeu Filière de santé Maladies Rares FAVA-Multi Filière Maladies rares Têtecou RespiFIL - Filière de santé des maladies respiratoires rares Filfoie - Filière de santé des maladies rares du foie Filière de Santé Anddi-rares ... See more