VASCERN Spotlights: Claudia Crocione
✨This month's VASCERN Spotlights article features Claudia Crocione! ✨ Claudia is ePAG Co-Chair for the Hereditary Haemorrhagic Telangiectasia Working Group (#HHT-WG)! She shares how she became involved with VASCERN and her experience so far, what she would like the general public to know about the reality of living with a rare disease, and her hopes for this “revolution” that is the European Reference Networks (ERNs)! Read the full article here: https://vascern.eu/vascern-spotlights-claudia-crocione/ HHT Onlus Claudia C #PatientInvolvement EURORDIS - European Rare Diseases Organisation ... See more