EJP RD – European Joint Programme on Rare Diseases
Have you taken a look at the European Joint Program on Rare Diseases (EJP-RD) website lately? It's a great resource for the rare disease community as it lists all upcoming EJP-RD Workshops (such as the Workshop and Hackathon: Molecular pathways for rare disease (FAIR) data analysis; register here: http://www.ejprarediseases.org/index.php/workshop-and-hackathon-molecular-pathways-for-rare-disease-fair-data-analysis/), training workshops for patient advocates organised by EURORDIS - European Rare Diseases Organisation, EJP-RD-related events (such as the RE(ACT) Congress 2020), ERN-related events (i.e. VASCERN Days 2019 ??), new support documents published (such as the new Pillar2 proposal for ERN registries called 'Towards effective, interoperable rare disease registries, in collaboration with the EJPRD'), careers offered by the EJP-RD partners, and gives you access to the EJP-RD helpdesk and clinical support office (https://www.ejprarediseases.org/index.php/ejp-rd-helpdesk/), which can offer clinical study support and answer any other questions you may have! Plus lots more!! Make sure to take a moment to browse their website this weekend!!!? ... See more
