www.irdirc.org
International Rare Diseases Research Consortium
(IRDiRC) has just published a report entitled "State of Play of Research in the Field of Rare Diseases: 2015-2018"!?
"The report aims to inform stakeholders at large of developments in the field of rare diseases and
support decisions of policy makers and research funders."
It offers a very comprehensive ??? overview the recent Rare Disease policy initiatives (such as the European Reference Networks (ERNs) and the Clinical Patient Management System (CPMS)☺♥), rare disease infrastructures, a glimpse on the trends and gaps of research on rare diseases, plus more!
Read it here this weekend ?: http://www.irdirc.org/wp-content/uploads/2019/09/IRDiRC_State-of-Play-2018_Final.pdf
EURORDIS - European Rare Diseases Organisation Ern-Eye ERKNet MetabERN Epicare ERN Rare Endo-ERN ERN for rare adult solid cancers Ern-Rnd European Reference Network for Rare Neurological Diseases ... See more
