The 9th Meeting of the European Reference Networks Coordinators Group was held yesterday and today in Brussels, Belgium. Both Prof Guillaume Jondeau, VASCERN coordinator, and Marine Hurard, VASCERN Project Manager, were in attendance! ?? Many important topics were discussed including the new HCP member call, the gaps and overlaps of the current ERN disease coverage and how to ensure that all rare diseases are covered by one of the 24 ERNs! These meetings are great opportunities for cross-ERN brainstorming and working together on common issues! ?? #ERNeu #ShareCareCure Ern-Eye Ern-Rnd European Reference Network for Rare Neurological Diseases Epicare ERN Rare Endo-ERN ERN for rare adult solid cancers ERN BOND - European Reference Network on Rare Bone Diseases eUROGEN ERN ERN GUARD-Heart ERN-LUNG - European Reference Network for rare respiratory diseases ... See more
