Event Information:

• Mon

  26

  Sep

  2016

  Fri

  30

  Sep

  2016

  4th International Summer School on Rare Disease and Orphan Drug Registries & RD-Connect BYOD Workshop to Link Rare Disease Registries

  National Centre for Rare Diseases, Rome

  The two events intend to promote the establishment of Findable, Accessible, Interoperable and Reusable (FAIR) Rare Disease (RD) registries in compliance with the IRDiRC and EU Recommendations and to support cooperation among different registry stakeholders and coordination with registries that are developed within National Plans in the EU in the field of rare diseases.

  All information available:  here