The lymphatic system & lymphatic malformations
This week we announced the publication of 3 new Pills of Knowledge (PoK) videos by the Vascular Anomalies (VASCA) Working Group! Let's take a look at the first one that presents the role of the lymphatic system in the human body and talks about lymphatic malformations! Subtitles available in English, Dutch, French, German, Italian, Spanish and Swedish?☺Watch it and share here: https://youtu.be/1a787Iaovzk Hevas Have a nice weekend everyone! ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/