Swedish version of Severe/Rare Infantile Hemangioma Patient Pathway now online
The translation of our outputs continues! ? The Severe/Rare Infantile Hemangioma patient pathway by the Vascular Anomalies Working Group (VASCA WG) is now available in Swedish! ?? Access it here: https://vascern.eu/swedish-version-of-severe-rare-infantile-hemangioma-patient-pathway-now-online/ And remember that patient pathways and all other translated materials can also be selected, by EU language, via our EU languages page:https://vascern.eu/eu-languages/ #ERNeu #svenska ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/