Have you read the latest VASCERN newsletter? ? Don't miss articles on World Lymphedema Day or #VASCERNSpotlights with Dr. Hans-Jurgen Mager, to name a few, plus lots of exciting upcoming events, including the Spring Rare Disease Working Group meetings and two webinars:
? Classification of Vascular Anomalies: Wednesday April 28th from 5:00-6pm CET - register here: http://vascern.eu/home/upcoming-events/?event_id1=12296
? HHT and the Lungs: SAVE THE DATE: Monday May 31st from 6:00-7:00 pm CET
Read it here: https://vascern.eu/?na=archive&email_id=95# ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/