Compression in Pediatric and Primary Lymphedema
A great video to share that introduces the therapeutic process involved in the treatment of Pediatric and Primary Lymphedema (#PPL) and in particular: compression therapy, the cornerstone of management and treatment in PPL! By PPL Working Group member Dr. Kirsten van Duinen. Don't forget that tommorrow is World Lymphedema Day! ? What do you have planned?
Dansk Lymfødem Forening andLINFA Svenska Ödemförbundet Nederlands Netwerk voor Lymfoedeem & Lipoedeem - NLNet Lymphido Asociación Galega de Linfedema KIF11 Kids e.V.
#worldlymphedemaday, #wld2020, #lymphedema #lymphoedema #lymphedemaawereness #nevergiveup #flauntyourcompression #rockthesock #primarylymphedema ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/