The European Commission now has a dedicated page for the European Reference Networks (ERNs) and COVID-19! ?This page includes information on the COVID-19 Clinical Management Support System (CMSS), including an eNews document in all 24 EU languages, the statement issued by the ERN Board of Member States, and a list of all the resources provided by each of the 24 ERNs (including the #VASCERN recommendations)! Access the page here: ➡ https://ec.europa.eu/health/ern/covid-19_en
#ERNeu ERN BOND - European Reference Network on Rare Bone Diseases Rare Endo-ERN Epicare ERN Ern-Rnd European Reference Network for Rare Neurological Diseases MetabERN eUROGEN ERN ERKNet Eurobloodnet - European Reference Network on Rare Hematological Diseases Ern-Eye ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/