Focus on the ERNs in the Health-EU newsletter!
Read an interview with the Chair of the ERN Coordinators group, Dr Franz Schaefer (from Universität Heidelberg), as he talks about the ERNs in this edition of the European Commission's Health-EU Newsletter! "One of the biggest challenges, says Schaefer, is getting local, regional and national healthcare providers to make ample use of this unique resource." Link to the full interview can be found here: https://vascern.eu/focus-on-the-erns-in-the-health-eu-newsletter/ #ERNeu #ShareCareCure ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/