"A love letter to your future self": What scientists need to know about FAIR data
If you're interested in rare disease research, it's time to familiarize youself with the FAIR data principles and how they make data findable, accessible, interoperable and reusable (VASCERN is aiming to make thier rare vascular disease registries FAIR)! If you would like to know more about FAIR, take a look at this article explaining its importance: https://www.natureindex.com/news-blog/what-scientists-need-to-know-about-fair-data?fbclid=IwAR0VeaIz6ZTrWOohQlT79drbjlvUaYgt7K8B3kBbWi9NEZyn2S0zbZpHUMs #research #FAIR #ShareCareCure #databases ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/