ec.europa.eu
The sub group "Training an Education" of the ERN Working Group on Knowledge Generation held their first face to face meeting in Brussels last week in order to discuss the creation of a common training and eLearning strategy. Lots of information was exchanged and representatives from 16 ERNs attended, including Raffaella Gaetano from VASCERN! :) Read about it here: https://ec.europa.eu/health/sites/health/files/ern/docs/20190225_news_en.pdf #ERNeu MetabERN ERN for rare adult solid cancers ERKNet ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/