Communication toolkit for ERN Members, ERN BoMS, national focal points and Commission Representations - Public Health - European Commission
? In case you haven't heard: the informative flyers and posters on the European Reference Networks (ERNs) for healthcare professionals and patients are now available in ALL European languages on the European Commission's website!!! Find them here: https://ec.europa.eu/health/ern/toolkit_en and make sure to share as much as possible to spread the word about the ERNs this weekend! #ERNeu #ShareCareCure ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/