Have you read our latest Research News? ? 
This month featuring an article entitled "Severe adverse events during sirolimus “off-label” therapy for vascular anomalies" that has been published in  the journal Pediatric Blood & Cancer and is co-authored by several members of the Vascular Anomalies Working Group (VASCA WG)! 
Read more about it here: 
https://vascern.eu/research-news-vasca-retrospective-study-on-severe-adverse-events-during-sirolimus-off-label-therapy-for-vascular-anomalies/ 
 
Hevas VASCAPA.asbl Bundesverband Angeborene Gefäßfehlbildungen e.V. LGD Alliance Europe - Lymphangiomatosis en Gorham's Disease Global Cmtc-Ovm Organisation   ...  See more