We've just submitted to the European Commission the data of our 18 ERN core indicators for 2017 and 2018. ?These indicators were established by the ERN Continuous Monitoring Working Group and approved by the ERN Board. To learn more about how this sytem will allow the ERNs to monitor their activity (and identity areas for improvement) and to read the full document detailing the 18 ERN indicators and the reasons behind their choice, read our latest article here: https://vascern.eu/18-core-indicators-defined-for-continuous-monitoring-of-erns/ #ERNeu #ShareCareCure ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/