• Thu
    15
    Dec
    2016
    Sat
    17
    Dec
    2016
    Milano, Italy

    The main philosophy of the meeting will be unchanged and our mission will be to offer to the participants an update focused mostly on the practical aspect of vascular surgery through a dynamic format based on rapid paced presentations.

    All information are available here

  • Thu
    15
    Dec
    2016
    Brussels, Belgium

    The ERN Board of Member States (maximum of 2 representatives from each EU Member States and EEA) and will meet on December 15th to take the decision on the approval of the Networks and HCPs positively assessed by the Independant Assessment Body.

    Read the Rules of Procedures of the Board of MS of the ERNs

    More information on the BoMS here

  • Sat
    10
    Dec
    2016
    Brussels, Belgium

    Programme and contact for registration available here

    Read the recent review paper on Fibromuscular Dysplasia and the European FMD initiative , a collaborative research coordinated by Prof. Alexandre Persu, Cliniques Universitaires St Luc, Brussels

  • Thu
    08
    Dec
    2016
    Brussels, Belgium

    During this meetingn, the European Commission will inform ministers on the European reference networks.

    More information here

  • Wed
    07
    Dec
    2016

    COST is the longest-running European framework supporting trans-national cooperation among researchers, engineers and scholars across Europe.

    You can submit your COST Action proposal at any time throughout the year via the new e-COST online submission tool. The next Collection Date is set for December 7, 2016. 

    There will be a next collection date in September 2017.

    All information on COST Action here

    Call documents and guidelines to submit a proposal here

  • Mon
    05
    Dec
    2016

    Conference Call meeting of the VASCern ePAG representatives, organised in cooperation with EURORDIS.

  • Wed
    30
    Nov
    2016

    The next session will take place 5-9th June 2017 in Barcelona.  The deadline for applications is 30th November 2016.

    Info and registration here

  • Tue
    29
    Nov
    2016
    Wed
    30
    Nov
    2016
    Brussels, Belgium

    The conference will specifically celebrate the 10th anniversary of the UN Convention on the rights of persons with disabilities. Presentations and discussions will focus in an interactive way on the progress which has been made in the EU to promote the rights of persons with disabilities, based on the UN Convention.

    All information here

  • Thu
    24
    Nov
    2016
    Rome, Italy

    The aim of the conference is to disseminate the findings from the RARE-Bestpractices project and offer a forum for discussing with relevant stakeholders how this work could be taken into account in delivering better health decision making and health policies for rare diseases.

    More information and registration here

  • Tue
    15
    Nov
    2016
    Thu
    17
    Nov
    2016
    Brussels, Belgium

    All information and registration here

  • Tue
    08
    Nov
    2016
    Tue
    14
    Mar
    2017

    Topic identifier: SC1-PM-19-2017
    Types of action: PPI Public Procurement of Innovative solutions

    Proposals should address as primary aim public procurement of innovative solutions (PPI) to facilitate the deployment of an eHealth infrastructure taking into consideration the European eHealth Interoperability Framework and EU guidelines adopted by the eHealth Network. The PPI(s), and any accompanying innovation activities in particular by participating procurers themselves to facilitate the uptake of newly developed solutions, should focus on clear target outcomes such as allowing the sharing of health information, the use of semantically interoperable Electronic Health Records (EHRs) for safety alerts, decision support, care pathways or care coordination. The scope of the PPI(s) is to specify, purchase and deploy innovative ICT based solutions which can deliver sustainable, new or improved healthcare services across organisational boundaries while implementing eHealth interoperability standards and/or specifications (e.g. EN13606, HL7, Continua Alliance, IHE...).

    The Commission considers that proposals requesting a contribution from the EU of between EUR 3 and 4 million would allow this specific challenge to be addressed appropriately. Nonetheless, this does not preclude submission and selection of proposals requesting other amounts.

    More information and call documents here

  • Tue
    08
    Nov
    2016
    Tue
    14
    Mar
    2017

    Topic identifier: SC1-PM-17-2017
    Types of action: RIA Research and Innovation action

    More information and call documents here

  • Tue
    08
    Nov
    2016
    Wed
    09
    Nov
    2016
    Brussels, Belgium

    The EPF conference “Patient and family empowerment for better patient safety” will explore these issues, including:
    •The ethics of patient involvement in safety: taking responsibility or being burdened with responsibility?
    •Challenges for patient empowerment and involvement in acute care settings
    •Challenges for healthcare professionals: is a fundamental culture change needed?
    •Communication: a risk factor or an opportunity to improve safety?

    All info here

  • Sun
    30
    Oct
    2016
    Thu
    03
    Nov
    2016
    Boston, US

    All information and registration here

  • Fri
    28
    Oct
    2016
    Sun
    30
    Oct
    2016
    Boston, USA

    All information and registration here

  • Wed
    26
    Oct
    2016
    Thu
    27
    Oct
    2016
    Chicago, Illinois, US

    ConferenceSeries and its subsidiaries including iMedPub LLC and Conference Series LLC Organise 3000+ Conferences across USA, Europe & Asia with support from 1000 more scientific societies and Publishes 700+ Open Access Journals which contains over 50000 eminent personalities, reputed scientists as editorial board members.

    All information and registration here

  • Mon
    24
    Oct
    2016
    Brussels, Belgium

    Conference on cross-border healthcare Directive “Towards amplified awareness of EU rights to cross-border care” - European Commission

    The conference aims mainly at:

    • Improving information provision to enable patients to cross-border healthcare;
    • Fostering better coordination between NCPs;
    • Amplifying NCP cooperation with patient organisations, healthcare providers and healthcare insurers for the benefit of patients.

    More information here

  • Thu
    20
    Oct
    2016
    Paris, France

    The French Rare Diseases Foundation (Fondation Maladies Rares) organises a seminar (in French) on Social and Human Sciences (SHS) projects and Rare Diseases. It includes a session on primary lymphoedema and financial inequalities in access to care.

    Draft programme: here

  • Wed
    19
    Oct
    2016
    Thu
    20
    Oct
    2016
    Cap Town, South Africa

    The purpose of this conference is to provide a global forum for all stakeholders within the Rare Diseases field, both locally and abroad, to participate in open discussion, enhance models of best practice and share specialist knowledge around rare diseases and orphan drugs. Incorporating the annual International Conference on Rare Diseases and Orphan Drugs (ICORD) for 2016, RareX has an extended program, to incorporate patients, their families and caregivers as well as support groups and minority groups within the rare disease community.

    All information and registration here

  • Fri
    14
    Oct
    2016
    Brașov, Romania

    This initiative consists of a series of half-day events where national research communities are informed by representatives of the COST Association about the COST Framework’s policies, activities and funding opportunities, with an emphasis on the Open Call for new COST Actions proposals.

    Information and registration here

  • Tue
    11
    Oct
    2016
    Wed
    12
    Oct
    2016
    Paris, France

    MAIN OBJECTIVES

    • To provide an overview of the latest scientific developments and challenges related to the use of ICT in medical research
    • To reflect on the regulatory, sociological, ethical, logistical and methodological framework for using ICT in medical research
    • To assess the state-of-the-art on the subject at an international level
    • To present, during innovation sessions, the products or solutions under development that could be applied in medical research
    • To promote partnerships between academic researchers and R&D scientists from the e-health industry
    • To increase public-private networking to develop long-term collaborations around ICT
    • To create the conditions for the collaborative development of tomorrow’s medical research

    All information and registration here

  • Mon
    10
    Oct
    2016
  • Wed
    28
    Sep
    2016
    Thu
    29
    Sep
    2016
    Brussels, Belgium

    RD-Action, the European initiative supporting the rare disease community and especially the ERN project, organises a 2-days Workshop on "Exchanging data for virtual care within the ERN Framework". The overall aim of this workshop is to generate and agree guidance and good practices for ERNs to collect and share data for care within the framework of ERNs. Potential Coordinators of the ERN project proposals being currently assessed by the European Commission have been invited to attend.

     

  • Tue
    27
    Sep
    2016
    Barcelona, Spain

    "Bringing solutions to young rare disease patients"

    Let's discuss the paediatric regulation

    All information here 

  • Mon
    26
    Sep
    2016
    Fri
    30
    Sep
    2016
    National Centre for Rare Diseases, Rome

    The two events intend to promote the establishment of Findable, Accessible, Interoperable and Reusable (FAIR) Rare Disease (RD) registries in compliance with the IRDiRC and EU Recommendations and to support cooperation among different registry stakeholders and coordination with registries that are developed within National Plans in the EU in the field of rare diseases.

    All information available:  here

  • Mon
    26
    Sep
    2016
    Brussels, Belgium

    The European Reference Network Board of Member States next meeting will take place in Brussels on September, 26th. The Member States representatives should discuss the 24 ERN Project Proposals which were submitted to the European Commission (DG Sante).

  • Thu
    22
    Sep
    2016
    Fri
    23
    Sep
    2016
    Washington Capital Hilton in Washington, DC

    The 4th, and final, GenTAC Thoracic Aortic Disease Summit will be held September 22-23, 2016 at the Washington Capital Hilton in Washington, DC. The previous 3 Thoracic Aortic Disease Summits brought together prominent clinical, translational and basic scientists who presented research on disease etiology, pathogenesis, progression and treatment. This meeting will be held to continue sharing new findings from GenTAC and the research community, to discuss the current advances regarding disease pathogenesis, progression, and treatment and to identify future directions for the field.

    More information here

  • Thu
    22
    Sep
    2016
    Fri
    23
    Sep
    2016
    Paris, France

    This International Conference will cover a vast range of topics, related to how “Engaging stakeholders for responsible Stem Cells research”. Our aim is to create a Task Force for improving the collaboration of  key stakeholders involved in the questions raised by the use of stem cells.

    More information here

  • Wed
    21
    Sep
    2016
    Sat
    24
    Sep
    2016
    Barcelona, Spain

    The 17th Biennial Meeting of the European Society for Immunodeficiencies (ESID 2016) offers unparalleled access to the latest research and analysis in the field of immunodeficiencies.

    More information and registration here

  • Mon
    19
    Sep
    2016

    More information: here and on the Facebook page here

  • Sat
    17
    Sep
    2016
    Waterloo, Belgium

    The Center for Vascular Anomalies (FR / EN)at Cliniques universitaires Saint-Luc in Brussels, Belgium, which takes care of a whole variaty of pathologies within the field of Vascular anomalies, organise its 25 years anniversary event on September, 17th. This HCP is represented in VASCern by Pr. Laurence BOON and Pr. Miikka VIKKULA, and Chair the VASCA-WG.

    More information on this event and registration here

  • Wed
    14
    Sep
    2016
    Sat
    17
    Sep
    2016
    Heidelberg, Germany

    Through the tremendous advances in the technology of mass spectrometry-based proteomics and its applications, the research has expanded to most areas of biology that deal with proteins. This conference will focus on the application of proteomics to cell biology and unraveling disease mechanisms by addressing conceptually novel ways to study long-standing questions in these fields.

    Topics

    • Cell Biology
    • Cell Signaling
    • Omics in Biology
    • Interaction proteomics
    • Chromatin proteomics
    • Genetics and disease

    More information and registration here

  • Mon
    12
    Sep
    2016
    Wed
    14
    Sep
    2016
    Berlin, Germany

    Genomics-2016 welcomes members around the world focused on learning about Genomics & Pharmacogenomics and its advances; this is your best opportunity to reach the largest assemblage of participants from the Genomics and its allied areas.

    More information and registration here

  • Thu
    08
    Sep
    2016
    Fri
    09
    Sep
    2016
    Ågrenska, Gothenburg, Sweden

    As part of the European project INNOVCare, EURORDIS is organising a workshop on “Integrated Care for People Living with Rare Diseases” - 8-9 September, Gothenburg. Focus on: developing a pilot care pathway, using “case management” to link health, social and community services supporting people with a rare disease.
    agenda
    Registration: contact raquel.castro@eurordis.org before July, 15th

  • Sat
    27
    Aug
    2016
    Wed
    31
    Aug
    2016
    Rome, Italy

    The world's largest and most influential cardiovascular congress.

    All information here

  • Tue
    02
    Aug
    2016
    Tue
    05
    Sep
    2017

    The ERC Proof of Concept Grants aim to maximise the value of the excellent research that the ERC funds, by funding further work (i.e. activities which were not scheduled to be funded by the original ERC frontier research grant) to verify the innovation potential of ideas arising from ERC funded projects. Proof of Concept Grants are therefore on offer only to Principal Investigators whose proposals draw substantially on their ERC funded research.

    More information in the ERC Work Programme 2017 (pp. 36-42)

  • Tue
    26
    Jul
    2016
    Tue
    18
    Oct
    2016

    Call identifier: ERC-2017-StG

    ERC Starting Grants are designed to support excellent Principal Investigators at the career stage at which they are starting their own independent research team or programme. Applicant Principal Investigators must demonstrate the ground-breaking nature, ambition and feasibility of their scientific proposal. Principal Investigator shall have been awarded his or her first PhD ≥ 2 and ≤ 7 years prior to 1 January 2017.

    More information in the 2017 ERC Work Programme (see pp. 21-22 for Starting Grants)

     

  • Tue
    12
    Jul
    2016
    Online

    The EURATOM Programme  aims to pursue nuclear research and training activities with an emphasis on continually improving nuclear safety and security, but there is also space for health-related projects under the fields of nuclear medicine, radiation protection and development of medical applications of radiation, including, inter alia, the secure and safe supply and use of radioisotopes.

    All information and registration here

  • Fri
    08
    Jul
    2016
    Brussels

    The InfoDay on H2020 Program for Health, Demographic Change and Wellbeing, will help interested stakeholders to find out information about the upcoming calls, development of a H2020 project proposal, partnerships, etc.

    More info here

  • Thu
    30
    Jun
    2016
    Berlin, Germany
    • Connecting and exchanging each in the worlds fastest growing business
    • Hear and learn best practises how to implement innovation in corporate culture
    • Solving healthcare challenges together
    • Accelerating transforming healthcare in digital times
    • Validate the economics of digital health and how consumer are likely to react to inception
    • Identify business opportunities within emerging markets healthcare system

    All information here

  • Thu
    02
    Jun
    2016
    Fri
    10
    Jun
    2016
    Amsterdam

    eHealth Week 2016 is organised by the Dutch Ministry of Health as part of the Dutch Presidency of the Council of the European Union, the European Commission and HIMSS Europe. This year’s educational programme will focus on three main themes: Empowering People, Trust & Standards and Social Innovation & Transition.

    More information and registration here

  • Wed
    01
    Jun
    2016
    Thu
    02
    Jun
    2016
    Brussels

    The European Commission, DG Research and Innovation, organise a conference on Personalised Medicine. This two days event aim to foster research on Health new technologies, innovation, sustainable health. More information and inscription on the European Commission dedicated page here

  • Thu
    26
    May
    2016
    Sat
    28
    May
    2016
    Edimbourg

    The European Conference on Rare Diseases and Orphan Products is organised by EURORDIS - the association which represents the Voice of Patient Organisations throughout Europe - with the support of the European Commission. It will be an opportunity to meet all European Partners and stakeholders involved in Rare Diseases, thus fostering European cooperations. More info and registration here

  • Wed
    25
    May
    2016
    Brussels

    ERN Coordinators applicants are going to meet in Brussels on May, 25th with the European Commission. During this meeting, the status of ERN applications, progresses and difficulties will be discussed.

  • Wed
    18
    May
    2016
    Fri
    20
    May
    2016
    Tübingen (Germany)

    This congress will address  topics such as : high-throughput methods and data analysis, functional imaging in multiomics approaches, application of PM in clinical decision making and translation of PM into clinical trials in state of the art lectures, hands on workshops and interactive discussion rounds.

    More information here

  • Thu
    12
    May
    2016
    Fri
    13
    May
    2016
    Oslo

    The European Programme for Research and Innovation, Horizon 2020, cofunds research projects in the field of Rare Diseases (call H2020 2016-2017) : New therapies for Rare Diseases and Diagnostic characterisation of rare diseases. The Norvegian Council for Research, together with the French Institute of Oslo organise this event in order to gather Project leaders and potential European partners from the scientific community around research projects in Rare Diseases.

    Programme and registration

     

  • Tue
    03
    May
    2016
    Fri
    06
    May
    2016
    New York

    The International Symposium on Ehlers-Danlos Syndrome will take place in New York between May 3–6, 2016. All information can be found here

    The Vascular Committee includes several of our ERN Members, who are dealing with vascular Ehlers-Danlos Syndrome (vEDS) in the framework of our Medium Size Arteries Diseases Working Group : Pr. Julie De Backer, Dr. Leema Robert, Pr. Xavier Jeunemaître, and further partners.

  • Thu
    07
    Apr
    2016
    Brussels

    The ERN Call for proposal 2016 was released on March, 16th, with a deadline on June, 21st. This first ERN Info Day aims to gather all stakeholders interested and currently drafting ERN proposals to explain the Call as well as to answer all questions.

  • Wed
    06
    Apr
    2016

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