What is Heritable Thoracic Aortic Disease (HTAD)?
Last night the Heritable Thoracic Aortic Disease Working Group (HTAD-WG) held their monthly virtual meeting! The group discussed their updated patient pathway for HTAD, new Do's and Don'ts for Loeys-Dietz syndrome, the #3aweek campaign (and how clinicians can get involved) and their upcoming face to face meeting in May! :) Still don't know what HTAD is? Take a look at this Pill of Knowledge (PoK) video by Prof Julie De Backer, Chair of our HTAD-WG, where she explains both syndromic and non-syndromic forms of HTAD and explores the genetics of this group of diseases. AssoMarfans Marfan Hilfe - Deutschland e.V. Marfan Europe Network Syndrome de Marfan den-i asbl Association Belge du Syndrome de Marfan - ABSM asbl Aortic Disease Awareness Day Svenska Marfanföreningen Asociación Síndrome de Marfan-España-SIMA . ... See more
