NEW on our Youtube Channel?: A Pill of Knowledge (PoK) by the European Patient Advocacy Group (ePAG) members of VASCERN's Heritable Thoracic Aortic Diseases (HTAD) Working Group! ?This lovely and informative PoK explains the role of patient advocates in the European Reference Networks and talks about the #3aweek campaign! Great job Lise,Tony, Françoise and Elena!!!? Watch it here: https://youtu.be/i6HCWrQkquQ
AssoMarfans Svenska Marfanföreningen Association Belge du Syndrome de Marfan - ABSM asbl Marfan Hilfe - Deutschland e.V. Asociación Síndrome de Marfan-España-SIMA . English and French subtitles currently available! ... See more