EURORDIS - European Rare Diseases Organisation
??Wonderful news for the rare disease community: for the first time, the 193 United Nations (UN) Member States adopted a political declaration on universal health coverage (UHC) that includes the mention of Rare Diseases!!? Read more about it here: https://vascern.eu/rare-diseases-included-in-united-nations-political-declaration-on-universal-health-coverage/ and find the joint statement from @EURORDIS EURORDIS - European Rare Diseases Organisation, Rare Diseases International and the NGO Committee for Rare Diseases below! Well done to everyone involved in the advocacy actions leading to this important milestone! #RareDiseases ... See more