We are very pleased to announce the publication of an article entitled “??????? ??? ???????? ???? ???? ????????: ??? ??????? ??????? ????? ?? ??? ???????? ????????? ??????? ?? ???? ????????????? ???????? ???????? (???????) in the Orphanet Journal of Rare Diseases (OJRD), which outlines the work of our former eHealth Working Group.
"Overall, the work carried out by the eHealth WG of VASCERN can be seen as a pilot experience that may serve as a basis to for collaborative development of patient-centred eHealth tools that answer the needs of patients with various rare diseases, not limited to rare multisystemic vascular diseases. By expanding the multidisciplinary approach here described, clinical and research networks can take advantage of eHealth services and use them as strategic assets in achieving the ultimate goal of ensuring equity of access to prevention programs, timely and accurate diagnosis and specialized care for patients with rare diseases throughout Europe."
Read more and access the full article here: https://vascern.eu/new-ojrd-publication-highlights-vascerns-ehealth-services-and-main-actions/ ... See more
