Some happy to news to brighten your day ✨✨ A new #VASCERNSpotlights is now available! ☺ This month we talk to European Patient Advocacy Group (ePAG) Deputy Co-Chair for the Vascular Anomalies Working Group (VASCA WG), Maria Barea! Maria represents the patient organization VASCAPA.asbl from Belgium and shares with us the most memorable moments of her VASCERN experience so far (she has 3!?), her greatest hope for the ERNs and the complexities involved with supporting a child with a rare disease. Read her full interview here: https://vascern.eu/vascern-spotlights-maria-barea/
Hevas Bundesverband Angeborene Gefäßfehlbildungen e.V. LGD Alliance Europe - Lymphangiomatosis en Gorham's Disease EURORDIS - European Rare Diseases Organisation Radiorg.be ... See more