What is a French National Rare Disease Network ?
A great video for anyone wanting to know about the structure and function of the French National Rare Disease Networks, including how they interact with the European Reference Networks (ERNs) ???? The ERNs´ integration inside all Member States' National Health Systems/National Plans for Rare Diseases is essential to allow for the knowledge that is being pooled and generated in the ERNs to filter down to the national level. Learn about France's rare disease plan here: https://www.youtube.com/watch?v=wgWkCXa2ucY Thanks to Filière de santé Maladies Rares FAVA-Multi (The French Network for Rare Vascular Diseases) and Filfoie - Filière de santé des maladies rares du foie (The French Network for Rare Liver Diseases) for this English version! :) ... See more
