Unmet medical needs in vEDS - patients perspective
Last night the Medium-Sized Arteries Group (MSA WG) held their monthly virtual meeting. This group currently covers vascular Ehlers-Danlos syndome (#vEDS). Take a look at this video by our ePAG Co-Chair Juergen Grunert and Deputy Co-Chair Charissa Frank for the MSA-WG on the unmet needs of vEDS patients and how the VASCERN MSA-WG is working to fulfill these needs (e.g. with educational materials, patient pathways and Do’s and Don’ts factsheets)! #PatientInvolvement bindweefsel.be -Vlaamse Vereniging voor Erfelijke Bindweefselaandoeningen Deutsche Ehlers-Danlos Initiative e. V. Subtitles for this video are currently available in French, Dutch, German and Italian! :) ... See more
