VASCERN ERN Rare Vascular Diseases
For those of you currently at home and looking for things to do, now is a great time to catch up on all the latest Pills of Knowledge (PoK) videos from the VASCERN YouTube Channel! ?? These informative videos cover various topics (for various publics) from the five rare disease working groups of VASCERN! There's something for everyone! And if you haven't already, please subscribe: ➡https://www.youtube.com/channel/UC1sI4_jnqiaLhjNhktiN7ZA
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EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/