Today is #WorldHealthDay! ??⚕?⚕? A day to recognize the incredible work and dedication of healthcare professionals around the world! ??We would like to take a moment to thank all of the healthcare workers in the #EuropeanReferenceNetworks, including nurses & midwives (2020 is the International Year of the Nurse and Midwife), working to care for rare disease patients as well as all of those who are currently battling the #COVID-19 pandemic and giving their all to keep us safe! Learn more here: https://www.who.int/news-room/campaigns/world-health-day/world-health-day-2020 and share to say thank you! ? #ERNeu #SupportNursesandMidwives #StaySafeStayHome ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/