Hereditary Haemorrhagic Telangiectasia from VASCERN HHT
It's Friday ? Hope everyone is still keeping safe! ? If you're looking for something to do this weekend, why not re-watch one of your favourite Pills of Knowledge videos on the VASCERN Youtube Channel? Like this one from the Hereditary Hemorrhagic Telangiectasia (HHT) Working Group, that was filmed with all of the group's members back at #VASCERNDays2018! Take a look here and share: https://youtu.be/0YjWf7Agn40 Sending strength to the healthcare workers and everyone affected by covid19 ?? HHT Onlus HHT España HHT Ireland Oslers/HHT Sverige Amro France HHT Cure HHT HHT UK HHT- Osler foreningen Norge HHT Morbus Osler Selbsthilfe e.V. ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/