Upcoming events
The official event page of the 4th Conference on European Reference Networks: "ERNs in action" is now available on the European Commission's website! We are really looking forward to this event next week and to seeing everyone from the ERN community as we share our accomplishments to date and look towards the future! Find the link to the official event page, the full programme and who from VASCERN will be attending/presenting here: https://vascern.eu/home/upcoming-events/?event_id1=4029 For those of you who are not attending but would like to follow along, there will be web streaming of the conference (https://ec.europa.eu/health/ern/events/ev_20181121_en)! :) #ERNeu #ShareCareCure ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/