Photos from VASCERN: The ERN on rare multisystemic vascular diseases's post
Attended the Clinical Patient Management System (CPMS) Workshop for ERN Experts today in Brussels! ? Great training session by the ERN IT team of DG Sante European Commission and OpenApp this afternoon learning about all of the new features and upcoming developments. Nice to meet helpdesk members from other ERNs all ready to assist our healthcare professionals with participating in virtual panel discussions! ? #ShareCareCure ErnRnd Rare Endo-ERN ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/