Health-EU newsletter 228 - Focus - Public Health - European Commission
Monday reading ??: Andrzej Rys, Director responsible for health systems, medical products and innovation of the Directorate-General for Health and Food Safety at the European Commission talks about the Cross-border Healthcare Directive and its benefits in the latest Health-EU newsletter, with a special mention of how it paved the way for the creation of the ERNs! :)
"Significant progress has been achieved, and I am delighted that the European Reference Networks are a very concrete example of EU added value and of the benefits that Europe can gain when we choose to join forces in thematic strands rather than work individually or in silos." ?
Read full article here: https://ec.europa.eu/health/health-eu-newsletter-228-focus_en #ShareCareCure #ERNeu ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/