VASCERN Spotlights
Did you know that you can now find all of the 
VASCERN Spotlights articles on a dedicated page on our website? This way you can (re-)read and share your favourite interviews with VASCERN's healthcare professionals and patient advocates more easily! Go to the heading NEWS 
VASCERN SPOTLIGHTS to find them all! Link here: https://vascern.eu/news/vascern-spotlights/ We are also currently updating many other pages of the website so visit regularly to catch all the updates! ?? #ERNeu #ShareCareCure ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/