VASCERN at the 5th annual FAVA-Multi Day!
Last Friday, VASCERN was present at the 5th annual French Network for Rare Vascular Diseases - Filière de santé Maladies Rares FAVA-Multi Day! ?? This day included presentations from VASCERN's Coordinator, Prof Guillaume Jondeau, Project Manager, Marine Hurard, as well as other French VASCERN members! Lots of interesting topics discussed! For a brief rundown of the day, take a look here➡: https://vascern.eu/vascern-at-the-5th-annual-fava-multi-day/ Amro France HHT AssoMarfans ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/