2019 call for membership to the existing European Reference Networks (ERNs) will open soon - Public Health - European Commission
In the coming weeks (before the end of the month?) the European Commission will launch the call for new members to join the existing 24 ERNs! ?We currently have 30 Healthcare Provider (HCP) members and this call will allow for our network to grow! Find out how to apply and get answers to all the frequently asked questions regarding this call here: https://ec.europa.eu/health/ern/consultations/2019_call_membership_en ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/