The wait is over!?? The Pills of Knowledge (PoK) videos filmed at the Medium-Sized Arteries Working Group (MSA WG)'s vascular Ehlers-Danlos syndrome (vEDS) study day in London on July 1st, 2019 are now available for your viewing! We would like to thank the The Ehlers-Danlos Society for their kind support with this video project which aims to educate medical students/trainees and healthcare professionals on various topics related to vascular Ehlers-Danlos syndrome. Find all 16 PoK videos, in English, here: https://vascern.eu/16-new-pills-of-knowledge-pok-videos-from-the-medium-sized-arteries-msa-wgs-vascular-ehlers-danlos-syndrome-study-day-in-london/
bindweefsel.be -Vlaamse Vereniging voor Erfelijke Bindweefselaandoeningen Deutsche Ehlers-Danlos Initiative e. V. Annabelle's Challenge Vascular EDS Charity Ehlers-Danlos Support UK #vEDS #eHealth ... See more
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research Centre (JRC), on Domain specific Common Data Elements (DCDEs) Curation targeted towards clinicians and people with a medical background to join.The online meeting will take place on December 9th, 2021 from 16.00 – 17.00 CET.In this meeting, the organisers will begin to curate the list of Domain specific Common Data Elements (DCDEs) compiled by the EJP RD FAIRification stewards from the data dictionaries provided by the ERN registries. The aim of the DCDEs is to be able to share domain specific data between ERNs, data that is not currently covered by the Common Data Elements (CDEs).More information and registration here: https://erica-rd.eu/event/domain-specific-common-data-elements-dcdes-curation/