Event Information:

• Thu

  08

  Jul

  2021

  Strategy Meeting: Alignment of national rare diseases strategies with the EJP-RD

  9:30AM-5:00PM (CET)Online

  EJP-RD is organising an integrative research and innovation strategy meeting on the theme of alignment of national rare disease strategies with the EJP-RD. The fully online meeting will take place on July 8th, 2021 from 09:30 AM to 5 PM (CET).

  This event is open for policy makers and persons involved in national, EU, and international rare diseases strategies.

  The workshop is organised by one of the EJP-RD work packages and will focus on:

  • Presentation of EJP-RD advancement and analysis of national actions
  • Review of country-level best practices and challenges identified from a survey
  • Discussion of the way forward.

   

  Online registration for the event is open until July 1st at the link here.