The ERN Call for proposal 2016 was released on March, 16th, with a deadline on June, 21st. This first ERN Info Day aims to gather all stakeholders interested and currently drafting ERN proposals to explain the Call as well as to answer all questions.

The EPF conference “Patient and family empowerment for better patient safety” will explore these issues, including:
•The ethics of patient involvement in safety: taking responsibility or being burdened with responsibility?
•Challenges for patient empowerment and involvement in acute care settings
•Challenges for healthcare professionals: is a fundamental culture change needed?
•Communication: a risk factor or an opportunity to improve safety?

All info here

All information and registration here

The aim of the conference is to disseminate the findings from the RARE-Bestpractices project and offer a forum for discussing with relevant stakeholders how this work could be taken into account in delivering better health decision making and health policies for rare diseases.

More information and registration here

The conference will specifically celebrate the 10^th anniversary of the UN Convention on the rights of persons with disabilities. Presentations and discussions will focus in an interactive way on the progress which has been made in the EU to promote the rights of persons with disabilities, based on the UN Convention.

All information here

Conference Call meeting of the VASCern ePAG representatives, organised in cooperation with EURORDIS.

During this meetingn, the European Commission will inform ministers on the European reference networks.

More information here

Programme and contact for registration available here

Read the recent review paper on Fibromuscular Dysplasia and the European FMD initiative , a collaborative research coordinated by Prof. Alexandre Persu, Cliniques Universitaires St Luc, Brussels

The ERN Board of Member States (maximum of 2 representatives from each EU Member States and EEA) and will meet on December 15th to take the decision on the approval of the Networks and HCPs positively assessed by the Independant Assessment Body.

Read the Rules of Procedures of the Board of MS of the ERNs

More information on the BoMS here

The main philosophy of the meeting will be unchanged and our mission will be to offer to the participants an update focused mostly on the practical aspect of vascular surgery through a dynamic format based on rapid paced presentations.

All information are available here